FLORIDA STATE UNIVERSITY
The official logo for the Florida Institute for Pediatric Rare Diseases at the FSU College of Medicine. The design features the classic "FSU" block lettering separated by a vertical line from the institute's name in garnet text.

FSU | Florida Institute for Pediatric Rare Diseases

Program News

SUNSHINE GENETICS

PROGRAM NEWS

IPRD & A.J. Anderson Foundation Launch Powerful Rare Disease Event

(June 3, 2026)

a woman speaking and gesturing with her hand at a wooden podium labeled "Hyatt Regency Orlando Int'l Airport," with a maroon box in the top-left corner displaying the text "MAY 1".

Florida Association of Genetic Counselors Annual Conference

(May 1, 2026)

Graphic with "FEB. 4" in a maroon box and "BEACONS" in large cyan text.

Sunshine Genetics adopts a tier 1 condition list from the BEACONS study

(Feb. 4, 2026)

Close-up of a glowing, multicolored DNA double helix with the date "OCT. 13" in the top-left corner.

GeneDx to Partner with Florida’s Sunshine Genetics Network, Launching Nation’s First State-Backed Genomic Newborn Screening Program

(Oct. 13, 2025)

A group of approximately 15 people stands behind a long conference table in a modern meeting room. In the top left corner, there is a large, solid maroon rectangle with the text "OCT. 10" written in bold, white font.

First Formal Sunshine Genetics Steering Committee

(Oct. 10, 2025)

A commemorative poster for the Sunshine Genetics initiative, signed by various individuals and featuring the logos of partner institutions including FIU, Florida State University, Nicklaus Children's Hospital, UF, University of Miami, and USF Health. A maroon box in the top-left corner features the text "AUG. 15" in white.

USF Joins Statewide Effort to Expand Newborn Genetic Screening and Genomic Medicine

(Aug. 15, 2025)

A close-up of a small, square, black-and-gold electronic chip resting on the tip of a person's index finger in a laboratory setting. A maroon box in the top-left corner features the text "JULY 11" in white.

Florida Sunshine Genetics Act Becomes Law, Funding Newborn Genome Sequencing Pilot

(July 11, 2025)

Florida Representative Adam Anderson and FSU President Richard McCullough stand together outdoors on the FSU campus, smiling as they jointly hold an oversized ceremonial check. The check is made out to the Institute for Pediatric Rare Diseases in the amount of $2,000,000. A maroon box in the top-left corner features the text "JULY 9" in white.

Sunshine Genetics Act News Conference

(July 9, 2025)