FSU | Florida Institute for Pediatric Rare Diseases

FLORIDA STATE UNIVERSITY
The official logo for the Florida Institute for Pediatric Rare Diseases at the FSU College of Medicine. The design features the classic "FSU" block lettering separated by a vertical line from the institute's name in garnet text.
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2026 News

2026 News & Events

IPRD RESEARCHERS

IPRD & A.J. Anderson Foundation Launch Powerful Rare Disease Event

(June 3, 2026)

a blue microphone icon centered within concentric, dotted sound waves on a dark background, with a maroon box in the top-left corner displaying the text "MAY 16".

Pradeep Bhide, Ph.D., and Rep. Adam Anderson discuss Newborn Sequencing on DNA Today Podcast

(May 16, 2026)

two smiling researchers wearing FSU white lab coats inside a laboratory setting, with a maroon box in the top-left corner displaying the text "MAY 11".

Minh Quan Le Awarded Inaugural Summer Research Fellowship

(May 11, 2026)

A glowing blue and red double helix DNA strand is being cut by a pair of translucent scissors with the text "APRIL 24" in the top left corner.

“Cell-Specific DNA Methylation in Human Alpha and Beta Cells Regulates Gene Expression in Type 2 Diabetes”

Boris Kantor, Ph.D.
(April 24, 2026)

Six professionals stand in a row for a group photo in front of a green backdrop with a calendar graphic in the upper left corner marking April 14.

Cynthia Vied, Ph.D., Shares Insights at Quest Diagnostics FOCUS Leadership Series

(April 14, 2026)

Three people smile together in a photo with a maroon border featuring the date "March 17" in the top left corner.

Leanne Duke, Ph.D., Receives Prestigious Early Career Investigator Award

(March 17, 2026)

An illustration of a DNA double helix being edited is shown next to the text "CRISPR CAS9" and a maroon box that reads "MARCH 12."

“CRISPR-Cas editing technologies for viral-mediated gene therapies of human diseases: Mechanisms, progress, and challenges”

Boris Kantor, Ph.D.; Leanne Duke, Ph.D.; Pradeep Bhide, Ph.D.
(March 12, 2026)

A smiling woman with dark curly hair and glasses is pictured next to a maroon box that reads "MARCH 11."

Ashley Cannon, Ph.D., M.S., CGC, the Inaugural Director of the IPRD Master’s Program in Genetic Counseling

(March 11, 2026)

A man in a suit and glasses speaks at a wooden podium with a floral arrangement behind him and a maroon box in the top left corner that reads "FEB 27."

IPRD Commemorates Rare Disease Day 2026 with National Leaders in Genomics

(Feb. 27, 2026)

Two women in white lab coats and black gloves review data on a large Illumina monitor in a laboratory next to a maroon box that reads "FEB. 27."

Illumina Whole-Genome Sequencing Technology to Accelerate Rare Disease Testing in Florida

(Feb. 27, 2026)

A digital display of medical brain scans with red highlighted areas and the date Feb. 18 in the upper-left corner.

“Shared and distinct phenotypic profiles among neuro-developmental disorder genes”

Janelle Stanton, Ph.D.; David Ledbetter, Ph.D.
(Feb. 18, 2026)

Saanchi stands smiling on a sunny campus, wearing a light gray dress, with greenery, flowers, and brick arches behind her with the text "FEB 6."

Saanchi Shah, Ph.D., Awarded First Year Assistant Professor (FYAP) Grant

(Feb. 6, 2026)

A laboratory technician wearing black gloves places a strip of clear PCR tubes into a thermal cycler, with a "JAN. 26" calendar overlay in the top left corner.

IPRD 2026 Research Projects Announced

(Jan. 26, 2026)

RARE DISEASE NEWS

Expanding Access to Genetic Screening and Rare Disease Care

(June 6, 2026)

a researcher in scrubs and a mask looking through a microscope in a laboratory, with a computer monitor displaying a DNA helix in the background and a maroon box in the top-left corner showing the text "MAY 26".

Can Gene Therapy Change the Course of Alzheimer’s?

(May 26, 2026)

A person in a white shirt holds a newborn baby's head in their hands, with a calendar overlay reading April 30.

Irish Baby Among World’s First to Receive Experimental Gene Therapy

(April 30, 2026)

Graphic for April 23 featuring a glowing blue digital ear composed of particles against a dark, shimmering background.

FDA Approval of Regeneron’s Hearing Loss Gene Therapy Breaks Barriers

(April 23, 2026)

A gloved hand points toward a digital checkmark overlaying a row of amber medicine vials, with a garnet border in the upper-left corner featuring the text "MARCH 25."

FDA Approves Drug to Treat Neurologic Manifestations of Hunter Syndrome

(March 25, 2026)

An abstract 3D DNA double helix is shown alongside floating sequences of genetic code and a maroon box in the top left corner that reads "MARCH 9."

Protecting Genetic Information in Insurance: Florida Leads the Nation

(March 9, 2026)

A graphic for Rare Disease Day on February 23rd featuring a stylized logo of overlapping colorful hands and a central human figure.

Florida Institute for Pediatric Rare Diseases will Host Rare Disease Day symposium and Panel Discussion

(Feb. 23, 2026)

A man in a suit and striped tie speaks at a podium in front of an FSU backdrop next to a maroon box reading "FEB. 10."

Florida Law Models What Genetic Disease Testing Could Be

(Feb. 10, 2026)

Graphic with "FEB. 4" in a maroon box and "BEACONS" in large cyan text.

Sunshine Genetics Adopts a Tier 1 Condition List from the BEACONS Study

(Feb. 4, 2026)

EVENTS

IPRD & A.J. Anderson Foundation Launch Powerful Rare Disease Event

(June 3, 2026)

a woman speaking and gesturing with her hand at a wooden podium labeled "Hyatt Regency Orlando Int'l Airport," with a maroon box in the top-left corner displaying the text "MAY 1".

Florida Association of Genetic Counselors Annual Conference

(May 1, 2026)

Four women pose together in front of a monitor with a garnet border in the upper-left corner featuring the text "MARCH 31."

IPRD Supports Accessible Housing at Local Independence Landing Fundraiser

(March 31, 2026)

A man in a suit and glasses speaks at a wooden podium with a floral arrangement behind him and a maroon box in the top left corner that reads "FEB 27."

IPRD Commemorates Rare Disease Day 2026 with National Leaders in Genomics

(Feb. 27, 2026)

TIMELINE

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